Who
are the people with Multiple Sclerosis?
We
are your parents, your children, your brothers and sisters; we are the
person down the street; we are that lady or fellow who may walk a
little 'funny' at the grocery store. We are the people that you "tsk,
tsk" over because we might look "too good" to use a
handicapped parking space. We are the folks who may not be able to get
out to the Church or Temple every weekend; we are your peers; we are
human beings.
We
are the face of Multiple Sclerosis. A face that is nearly every
ethnicity; that comes from nearly every country, that does not
discriminate by social standing or class or financial or educational
background or language or religion. We are both able to walk
unassisted and use canes and walkers and wheelchair users; we jog and
swim and partake in sports; we are housebound, we use scooters; we
need respirators. We are everything in between. We are visually
impaired and we are not. We are at every level of physical ability
Of
course, we "look so good" while we're doing it. We hear that
phrase every day of our lives. Sometimes that phrase is meant as a
compliment and sometimes it is meant to hurt or meant to shame us into
doing something of which we may not be currently capable. We may be
able to do that something tomorrow, though, or next week; Multiple
Sclerosis is like that. We are like that.
Some
of us are hearing impaired; yet all of us occasionally have people
talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll
scream, speaking to us as though we were either hearing or
intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"
Of
course we do. Thank you very much. We are, in fact, the very best
looking people in the handicapped community. We have secret beauty
pageants every year, to decide which of our number is the absolute
best-looking. Billy Crystal emcees, as his character Fernando;
"..and you look MAHVELOUS my dear; absolutely
M-A-H-V-E-L-O-U-S..."
We
are brave. We are fragile. We want to live, and we want to end it all.
We look for support and we want to stand alone. We are Every person.
We are the People with Multiple Sclerosis. We are People, Just Like
You...
Virginia
Sanchez
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